We (mom, Molly, and I) went to Cincy again last night. We got there about 9 pm. We ordered pizza and got settled. It was fun to watch Molly in the back seat tapping on her car seat to the music. That kid is good at keeping a beat. She also won't let you stop once you start tapping! =) Once it was time to go to bed.......Molly said she needed to go tell the "big piggy" good night. We took the ride down the elevator and you should see the glow off of her face when she sees the big piggy! =) She is adorable. We are also sad.....the big piggy won't be there next time and neither will the hotel we have been staying at. The hotel is closing at the end of the month. We love it there and will be very very sad to see it close. The night time staff even know Molly's name!
The hotel itself is almost 100 years old. It is a beautiful old building. The history is amazing......there have been presidents, the beetles, tiger woods and many many dignitaries stay at the hotel. I did ask what was actually in the beetles suite.......it is a one room apartment that has a lot of beetles memorabelia inside. The hotel is designed after an estate in England.....that now houses antique armor......what a story because the "big piggy" is covered in armor! You put the rest together!
This morning....as we left the hotel for the hospital......Molly had to say good bye to the piggy forever. Every time we talk about Cincy, she knows that we will see the piggy. She signed that she was sad. I explained to her that the hotel was closing and that we wouldn't be able to see the piggy again. (Just so you know how much the piggy means to molly.....we even asked how much it would be for the piggy to come home with us.)
She said her good bye's(to the piggy and the pumpkin....that was in a cabinet that Molly always finds) and we were off.
We had another scope today. This one was a lot tougher. She really started signing hurt, scared and pointing to her hand........that is where two of her i.v.'s have been. She did all of that as soon as she saw the hospital. I feel awful taking her so often! She started crying once the transport person came to get her for surgery. I carried her down the long sterile hallways. It seems like it takes so much longer when she is upset and holding onto me for dear life. Nana followed us. We got to the induction room. She was not happy about being there and if she could have climbed her way out she would have. They were all very nice, but realized that she was not happy and we needed to get her sedated as quick as possible or it wasn't going to be pretty. They can give her meds to make the transition easier, but I hate to put something into her body that will not wear off quickly and makes her groggy the rest of the day. It is funny (b/c she doesn't really smell anything yet) that they ask us what smell Molly would like the anethesia to be......we always choose watermelon.....maybe we should change it up or she will always hate watermelon.
She was bucking in my arms and really getting worked up. I tried to hold her in my arms so they could put the circuit on. Once they got it on....I started to sing to her. That seemed to help her. She slowly and quietly drifted off into never never land.......not forever.....yes she would wake up but not happy!
This type of scope doesn't take very long. They are just looking at the airway and the progress of healing. Apparently, Molly heals very very well. The granulation tissue.....body's way of healing itself......had grown a lot. They injected the area with steroids....hoping that it would slow the tissue and eventually cause it to disappear. Her airway started out before all of this at a 2.0.(no airway)...now it is a 3-3.5. It was hard to tell because of the extra tissue. A person of molly's size should have an airway about a 4-5. Her airway right now is the size of a newborn baby at birth....it started at a premature baby before birth so we are working out way up to "normal". That means eventually we will have to do another stent,but right now they are really really pleased to see the progress she has made. Remember everything has always been in Molly time! Why would that change now? The graft looks really good.....it is pink instead of white. That means the body is accepting it and growing new mucosis around the area. The NP put it very well today. Molly's airway will never look "pretty"....right now it looks like a truck ran over it!
She said, the air that passes through the airway really doesn't care what it looks like, it just wants to get through! =) I think that is a pretty good analogy. Molly's incisions look great! After finally waking up.....she didn't want to have anything to do with the nurse. She would let the nurse take the i.v. out ......she figured that it would be easier to leave it in rather than have her take it out. That doesn't work if we want to go home....I tried to explain this to her but that really didn't go over very well......she really just wanted to go home. I convinced her to let me take the tape off and the nurse would only take out the i.v. itself. That seemed to be o.k. Out with the i.v. and off we went. We don't have to go back to Cincy for another month.
As we were leaving Cincy, Molly said she wanted to say good bye to the piggy one more time. We drove past the hotel.....she signed good bye and blew it kisses. They she signed all done and closed. Apparently she was paying attention when I was telling her it was closing......be aware of what you talk about around her......she remembers everything. Her mind is a steel trap!
Have an awesome day!
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