Hi everyone. I know...I know.....I am not good at keeping up with the blog. Jonah seems to be getting some more teeth.....it is really hard to type and keep a wiggly 7 month old on my lap.
All are asleep and quiet in the Hess household, so I have a couple of minutes to type!
Molly is doing great! She doesn't seem to notice that she actually had surgery three weeks ago. The stent was removed 10 days after the surgery. We stayed overnight one night after that. They keep them because of the risk of bleeding. They removed the stent and we went to recovery. That was a rough recovery room experience, because she has started hitting herself or kicking whatever is closest if she is scared.....which is usually Joe or myself. It is hard to calm her and tell her she is safe when we just told her that before she went into surgery. Now she thinks that word mean hurt. aaahhhh! Before this is all over, we are going to run out of words to use. After about 10 min., we started singing to her. Joe and I had to sing to her for about 20 min. while the nurse gave her some narcotics. She wasn't settling down. She goes from one extreme to another. That night she wanted to walk around her unit and play in the bubble car! She did go to sleep early while watching a movie with Daddy. It was a cartoon version of Alvin and the Chipmunks playing Batman! =) It brought me back! The doctors said everything looked as it should. Rough but stable. Her dissolvable stitches are mostly gone. They did have to make a small incision to remove the stent, but other than that it is not very noticeable unless you are looking for it! They put the incision horizontally so that as the child grows it will be masked in the creases in of their necks.
We went back this past Monday for a bronchoscopy. That is where they put her out and take pictures. She is catching on really quick. This time Joe wasn't able to take off work for the trip. Mom and I took Molly that morning and drove to Cincy. We won't drive that early again........=) I am not good at driving in the dark! We got there at 8:45 and in surgery by 10:15am. She is a strong bugger! I know that one of these times she is going to rearback and break my nose! I was able to hold her and sing to her as she went to sleep. My heart breaks because I see the fear in her eyes as we walk down the hall toward the O.R. This time she chose to have mommy carry her. She didn't want to ride on the bed like a princess. She wanted the security. She is a very smart kid. She will start signing hurt as we walk into the induction room, see the vent and all of the staff. She has chosen to take a tiger and a cheeta into the o.r with her .......maybe she chooses them to protect her? I would too if I thought they could keep all of those people away from me. The end result was her going to sleep peacefully and the o.r. attendant walked me back to my waiting post.
She did great. The recovery was much better this time. Not under as long as before....that makes a very big difference.......the nurse was ready to get her out of there before she even woke up!
She knew that Molly didn't want to be there either! The doctor said that they were pleased with the healing. There is some granulation tissue (comes with healing) that is growing on the back portion where they cut the airway. They are not too concerned about it right now, but they may have to take care of it at some point. The graft is healing nicely. They want it to eventually turn pink.....right now it is white. The fellow (person just under Dr. Cotton )said that a child with an airway issue as severe as Molly's usually has more than one graft surgery. Molly is a real trooper.
That being said......means that we may end up doing all of this over one or two more times. Oh well. I guess I have no choice. I am not the one going through all of the surgeries, just the one who worries about it all of the time. I think that as a mother that is what I am supposed to do? right? I will be honest......my "keep me sane" meds aren't working lately! I am really very edgy and not very happy. I can't seem to get caught up with anything and I always feel bad because our house is a mess. Those of you who knew me before kids know that our house was usually in order. Now we live in a pig stye! I try to get to something and a little person will interrupt. Does that happen to other people? I just want to complete one thing! I have a graduate application for Ball State Univ. for my license renewal classes. I have to take 6 hours of classes before the end of the year! When is that actually going to happen???????? When pigs fly? Oh well.
Molly did say Mama, GaGa....which is daddy,bye bye, and some more. She is really trying to get her mouth moving and the sound to come out. Our only problem is that "practicing" her talking is not what she needs to be doing right now. It puts strain on the voice box. Talking can cause more granulation tissue. How do you tell an kid that can now make some sounds that she is not supposed to us her new talent? We think her taste buds are really getting activated because she is craving foods(just to play with). She does like milk and will ask for the white drink......not the sign for milk which is much easier!
We will go back to Cincy Sunday night for another bronch on Monday morning. I just can't drive that early in the morning.!!!!!!
I will fill you in on the results!
I thought I would write a little note, but I wrote a book. Sorry!
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