Sunday, 01 March 2009

• One step closer...

  Hey everybody!  We are one step closer to coming home.  Molly got the drain tube out of her neck incision this morning.  Joe also asked them to change her trach.  It was harder and harder to get the secretions out when suctioning.  That can lead to a plug and that is really bad!!!!!!!  Molly was doing great today.  That kid is amazing and very brave.  She took a nap this morning but after that .......up all day.  I left about 15 min. ago and she was still going strong.....even though she didn't want to admit that she was tired.  She had a very busy day.  She watched Noggin.....we don't have this at home so it is all new cartoons.  She read books, played with toys......and her new friend Demario.  He is in the room next to her.  He is 2 and absolutely adorable.  Molly thought his hair was fun.....he is african american, so she liked rubbing his head.  =) He was funny because he started rubbing his head, like what is so cool about this?  She is a hoot.  She then thought it was fun to touch all of the nurses' hair, just to see what they felt like.  She went for wagon rides, walked around our pod, tried out all of the computers and tried to walk into the meds closet!  Of course everyone fell in love with her!  It isn't hard to do.  She waves at all the nurses when they leave but she covers her eyes as if she is hiding from them when they come into the room. She and Demario walked around and even pushed a stroller with a baby doll in it together.  They were so cute.  I would have taken a picture but I couldn't because of  HIPPA regulations.  It is one that will be in my mind =-)

  Molly is one brave kiddo.......she hasn't had any pain medicine since Friday night.  If you ask her if she is hurting, she signs no!  I did notice today that when we scoot her up in bed, she says "owowow" with her mouth.  She will tell you that it didn't hurt, but I know it does.  It has too!  Someone just cut into her rib cage and took something out.......it has to hurt!  We asked them to give her some regular tylenol tonight so she can get a good nights sleep.

  One thing to pray for is that the secretions won't get to be too much for her.  She is spitting up a lot of mucus.  There is extra mucus because of the stent holding her airway open so it can heal.  Spitting up really isn't good for an airway.  She is getting a lot of air in her belly......whether it is because of the airway being more open or because of the way we are feeding her.  It is causing a lot more burping and tooting......which, poor thing, makes her think she has to say excuse me every time she does either one. =-)  She is too cute.  Molly does get a bit upset when she spits up.  She really doesn't want to do it and frustrates her.....which causes her to take it out on who ever is closest.  That was me today!  I put a throw-up tub in front of her.....she didn't throw up in, but she did get a good grip on it.  She flung it at me while I was suctioning.  Of course, I signed stop!!!!!  I finished what I was doing and went to put her food back in the fridge.  The nurse asked me if Molly threw the tub at me.  She was kind of smiling......I said yes.  I almost started laughing because I could tell she wanted to.  I am sure it was very funny to see a tub go flying through the air in a 3 year old's room.  The nurse said "she looks like such an angel.....there must be an arnory little girl in there!"  I definitely agree.  When Molly is done with something....she is done!  No question.

  We should be going home tomorrow, but we are never sure about anything!  We will keep everyone updated.

  Good night!

   

  • 9:54 PM
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